High Risk Pregnancies
I was watching an old episode on Oprah today; I love Oprah's show so much. I always had a dream to write a novel and it be so wonderful that she has me on her show even before she started the Book Selection Club. Well, I still haven't got around to that novel, so I dreamnt of going on the show to promote lupus awareness and become a volunteer guinea pig of Dr Oz's where they would run every blood and other test possible that seems to determine anything and everything wrong with participants. I think every lupus patient deserves that type of testing after diagnosis. But anyway, tthat is another night's topic, I am not digressing tonight. Unfortunately at this point the blog is not getting nearly enough attention for Oprah to notice it, haha. So, I have a long list of reasons why it can't happen but it is still my goal despite all of the reasons. But since my timing is short now, the most important message and how I could impact the majority of her audience now would be to discuss the danger of high risk pregnancies and my experience with the delivery of my second son that I call my miracle boy. I came very close to dying during the c-section but I was lucky enough to have a great OB doctor who saved my life by suggesting an operation that did not come up on google, so new because it had only been done in University hospitals. The surgery saved my life while rich, poor, young, old, and women of every ethnicity are dying needlessly every day because they do not know about this surgery. The surgery is called internal iliac artery balloon occlusion. Now my story;
I had to stay in the hospital on bedrest for 6 weeks before the birth of my son. I had complete placenta previa throughout the pregnancy where the placenta is underneath the sac where the baby lives blocking the baby from being delivered. If this had been 50 years ago, the doctor would have had no idea of it until delivery and in all likelyhood both my son and I would have died. But my OB was made aware of my placenta previa at week 5 during my first ultrasound. Having lupus, I was automatically labeled as a high risk pregnancy and had dozens of ultrasounds throughout the pregnancy. Usually the placenta previa fixes itself but from the get go my baby implanted so low and the placenta never budged. Once my OB determined it was not going to move, he met with the hospital's chief radiologist and he agreed to perform his first internal iliac artery balloon occlusion procedure with a pregnant woman. I stayed awake during the procedure which is usually discouraged but I knew if I went under, he would go under too and be asleep at delivery. In the operation, they had an xray machine watching the baby while they heloped me. In the roin area where he implanted balloons that were inflat.during the c-section to help prevent hemhoraghing. The balloons, once inflated, would press up against the blood vessels of my uterus to help slow the bleeding down. I still hemorhagged , lost a lot of my blood and my uterus and one ovary were attached to the placenta and were lost too. But most importantly, I was wheeled out of the hospital days later with my baby boy in my arms.
The surgery had primarily been done in university hospitals and it was the first time it was done at the hospital where I delivered. Thank goodness my doctor was innovative and not afraid to try new things. He told me flat out that had it not been for the balloons, he would not have died. The loss of my uterus was a tough loss that I really feel I have gotten thru but that is for another day, another topic.
So maybe, one day, Oprah will stumble onto this site, read my post and invite me and the doctors that saved my life on with Dr. Oz and talk about the high rates of maternal death at delivery and how many are related to placenta previa and other issues that can be linked to c - sections. Some women expect to have OPTIONAL c-sections and the risks are not clearly explained. My doctor says in 5 years, these balloons will be common practice in deliveries. But that is five years too long with too many deaths in between. And even if Oprah doesn't see this, if any women is in the same shoes I was in the summer 2009, they can google and find this blog and understand a little more about it. Please email me if you are in that position so I can give you more details on the surgery and be a support to you. If this blog helps one person demand the balloonms as added protection and it helps save their lives,that is all of the reward I need.
xoxo
Lupus Celebrity
I had to stay in the hospital on bedrest for 6 weeks before the birth of my son. I had complete placenta previa throughout the pregnancy where the placenta is underneath the sac where the baby lives blocking the baby from being delivered. If this had been 50 years ago, the doctor would have had no idea of it until delivery and in all likelyhood both my son and I would have died. But my OB was made aware of my placenta previa at week 5 during my first ultrasound. Having lupus, I was automatically labeled as a high risk pregnancy and had dozens of ultrasounds throughout the pregnancy. Usually the placenta previa fixes itself but from the get go my baby implanted so low and the placenta never budged. Once my OB determined it was not going to move, he met with the hospital's chief radiologist and he agreed to perform his first internal iliac artery balloon occlusion procedure with a pregnant woman. I stayed awake during the procedure which is usually discouraged but I knew if I went under, he would go under too and be asleep at delivery. In the operation, they had an xray machine watching the baby while they heloped me. In the roin area where he implanted balloons that were inflat.during the c-section to help prevent hemhoraghing. The balloons, once inflated, would press up against the blood vessels of my uterus to help slow the bleeding down. I still hemorhagged , lost a lot of my blood and my uterus and one ovary were attached to the placenta and were lost too. But most importantly, I was wheeled out of the hospital days later with my baby boy in my arms.
The surgery had primarily been done in university hospitals and it was the first time it was done at the hospital where I delivered. Thank goodness my doctor was innovative and not afraid to try new things. He told me flat out that had it not been for the balloons, he would not have died. The loss of my uterus was a tough loss that I really feel I have gotten thru but that is for another day, another topic.
So maybe, one day, Oprah will stumble onto this site, read my post and invite me and the doctors that saved my life on with Dr. Oz and talk about the high rates of maternal death at delivery and how many are related to placenta previa and other issues that can be linked to c - sections. Some women expect to have OPTIONAL c-sections and the risks are not clearly explained. My doctor says in 5 years, these balloons will be common practice in deliveries. But that is five years too long with too many deaths in between. And even if Oprah doesn't see this, if any women is in the same shoes I was in the summer 2009, they can google and find this blog and understand a little more about it. Please email me if you are in that position so I can give you more details on the surgery and be a support to you. If this blog helps one person demand the balloonms as added protection and it helps save their lives,that is all of the reward I need.
xoxo
Lupus Celebrity
Posted by lupuscelebrity at 4/14/2010 7:49 AM 
Categories: lupus and pregnancy, lupus
Tags: lupus sle lupus and pregnancy lupus complete placenta previa internal iliac artery balloon occlusion high risk pregnancy oprah. dr. oz c-section
Categories: lupus and pregnancy, lupus
Tags: lupus sle lupus and pregnancy lupus complete placenta previa internal iliac artery balloon occlusion high risk pregnancy oprah. dr. oz c-section
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