TODAY IS LUPUS ADVOCACY DAY

Band together for lupus everyone! Today we need to bombard Congress with emails.  I wish I was in D.C. but with 2 small children and no extra money lying around if we wanted to go as a family (which I would want; I think it would be a positive experience for the kids).  But even though I am not there in person; my heart is with you fellow lupies and I am sending positive and uplifting energy & thoughts to D.C. as you represent us, to help make lupus a well known disease with as much government funding as other diseases.  Delivering the message to Washington  and Obama that no new lupus drugs in 51 years (Benlysta should change that later this year) is totally unacceptable and more money is needed for research and development.  More and more people are getting lupus each year and we need to find our why.  I am seeing and hearing lupus commercials for the first time since I was diagnosed and it is so reassuring to hear them and know that my family and friends who are not as aware of my struggles will hear them and maybe understand why I don't do ladies night much (okay, hardly ever) and why I am such a homebody.

Please  EVERYONE  take action today for lupus. Make your voices heard to your Members of Congress by follow this link;   http://www.capwiz.com/lfa

Thank you all,

xoxo

Lupus Celebrity

Posted by lupuscelebrity at 3/16/2010 7:10 AM
Categories: lupus politics, lupus activism
Tags: lupus politics lupus Obama lupus activism lupus advocacy day lupus commercials benlysta lupus Congress
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