Benlysta Update: Taken by IV monthly

I try to talk to or read about anyone's experience with Benlysta just to ensure that it is still going well and no issues first of all for the health of me and all of you lupus readers out there (you are out there, right?) and a low second is for my stock.  I don't want to lose my family more money for a mistake on my part.  I have lost some $$ by a few stupid picks but overall we have done over 150% returns so I am happy with my handling of it

Anyway, back to Benlysta, the drug that will hopefully get fast track approval from the FDA soon.  We need this drug in 2010.  I read about a woman on methotexrate (MTX) and was about to go on steroids due to pain, went on Benlysta instead and 2 years later is doing great.  She still has some bad days but much much better than before and her blood work is better.

She shared Benlysta only stays in your system 28 days and it is taken once per month for one hour via IV.  But imagine not having your whole immune system suppressed, only the B cells where a lot of the genetic problems lie and getting part of your life back.  What a joy that would be.

50 years and no new drug...my fellow lupies, we are SO DUE! 
Thoughts?  Please let me hear from you!


xoxo

Lupus Celebrity

 
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  • 2/19/2010 8:16 PM Lorena wrote:
    Where did you hear about us getting it once a month ?
    Reply to this
    1. 2/21/2010 5:05 AM lupuscelebrity wrote:
      It was someone who was in the clinical trial commenting on how much it helped her.  I also verfied it from Benylysta.  Check out my next blog on many more details on Benylysta.  Thanks for the question!  It is so nice to know that people are reading 
      xoxo

      Lupus Celebrity
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