Technical difficulties...sorry
For anyone who might actually have bookmarked this site and checked to see if I had made any entries in the past 1 1/2 days, I sincerely apologize that the site was down for so long!
I, the incredible techie that I am, tried to make some changes to the blog; this is the first time i have done this, I am a virgin blogger
I created the website by myself with calls to Go Daddy technical support maybe, hmmmm...my lupus fog, I can't remember...if i had to give a guesstimate I would say 12 calls but then it was created (!) but not totally the way I wanted it. But I was so excited that it was launched and so embarrassed that I had bothered Go Daddy so much, I just decided to start with this and change it later. I would start reaching out to people, trying to get the website name and lupus out there and making a difference and so far it has been an interesting and enlightening journey and just unbelievably educational and healing for me at the same time. When I get a comment from one of you, I am just overjoyed. It makes my whole day to know that someone searched something for lupus, lupus celebrities, or however found my site, read my entries & thought enough to leave me a comment. I am not alone out in cyberspace! It just thrills me so thank you and please keep posting comments. I appreciate all of you and hope that by reading my blog, you feel less alone in this hard world with lupus.
OK, as always I digress, back to the site being down for 1 1/2 days. I am so sorry. I promise not to mess around with this site again until I am ready to knock your socks off with an updated site that has all sorts of lupus resources. But it might take me a while to figure out how to do all this after the mess I made of it this time so stay tuned, it might be a little while
Also, if you like reading me or want to be kept up to date on lupus, SUBSCRIBE!! The more subscribers I have, the more I hope I can negotiate prices on some of these products to get the site more out there.
This website is my goal for 2010. I want to update it as much as possible and be the website to go to for everything related to lupus, lupus news, where to find the best websites for our various secondary auto immune diseases so common for us luppies and more. I have so many more plans but there are only 11 entries from me so far in 2010. Not great, I know, but most of them are recent. I took a few extra days off from my New Year's resolutions due to holiday tiredness So I am trying to update at least once a day but hopefully more.
Enough on my plans, but I just want to explain one more thing about why I am doing this website. When I got lupus. I spent 3 years reeling, flaring, getting sicker and sicker by the day it seemed sometimes and I was angry, depressed, just a basket case. There is no other way to describe me. I was so angry, so scared, I would have horrible panic and anxiety attacks and was in so much pain, so bone dead tired like a tired I had never experienced before. I know all you luppies know what I mean but for any non-luppies reading, a bone dead tired so much worse than after the stay up all night sleepovers in my 20s that hurt so much more than the ones in my teens. A tiredness that made me fall asleep while sitting on my couch talking and laughing with 2 girlfriends, never making it through a movie, no matter how good it, waking up in a panic and not knowing where my toddler was because he had climbed out of my bed without me hearing him and left the only safe proof room in the house because the rest of it was (and still is) so filled with toys, clutter, dishes, etc. Fatigue that is just impossible to find words to describe other than bone dead tired. Like you can hardly move your body but you have to because we have kids, dogs, work, responsibilities so we are forced to function when we are that tired and it is so hard to keep moving when you just want to quit and run far away and sleep. It hurts to dress my kids, buttons are torture, put on shoes, brush hair, put on sunscreen, I am totally exhausted. When I am flaring really badly, I put toys and things for my littlest son to play with in the bedroom, make sure everything is safe put on Sesame Street and sleep as much as I can. And just function from task to task until my husband comes home and takes over and then I can lay in bed or take a bath and then take an Ambien or whatever and just sleep. Tell my husband he has kid duty and sleep as long as I can to try to strengthen my immune system as quickly as possible.
But I digress again! Back to my first digression, it will be 5 years in October since I was diagnosed and even now, the worst emotional sadness for mes feeling so alone. So that is my primary goal, to connect with other luppies and help each other to not feel so alone.
Now, I have completed digression 1 & 2, back to the original point of the totally annoying technical difficulties. I apologize again and promise I will do everything in my power to never have that happen again. I am very glad to be back, sharing and that my site is fixed. It is so therapeutic for me. Now please share back and leave a comment haha...I'm not kidding! Sweet dreams.
xoxo
Lupus Celebrity
I, the incredible techie that I am, tried to make some changes to the blog; this is the first time i have done this, I am a virgin blogger
I created the website by myself with calls to Go Daddy technical support maybe, hmmmm...my lupus fog, I can't remember...if i had to give a guesstimate I would say 12 calls but then it was created (!) but not totally the way I wanted it. But I was so excited that it was launched and so embarrassed that I had bothered Go Daddy so much, I just decided to start with this and change it later. I would start reaching out to people, trying to get the website name and lupus out there and making a difference and so far it has been an interesting and enlightening journey and just unbelievably educational and healing for me at the same time. When I get a comment from one of you, I am just overjoyed. It makes my whole day to know that someone searched something for lupus, lupus celebrities, or however found my site, read my entries & thought enough to leave me a comment. I am not alone out in cyberspace! It just thrills me so thank you and please keep posting comments. I appreciate all of you and hope that by reading my blog, you feel less alone in this hard world with lupus.OK, as always I digress, back to the site being down for 1 1/2 days. I am so sorry. I promise not to mess around with this site again until I am ready to knock your socks off with an updated site that has all sorts of lupus resources. But it might take me a while to figure out how to do all this after the mess I made of it this time so stay tuned, it might be a little while
Also, if you like reading me or want to be kept up to date on lupus, SUBSCRIBE!! The more subscribers I have, the more I hope I can negotiate prices on some of these products to get the site more out there. This website is my goal for 2010. I want to update it as much as possible and be the website to go to for everything related to lupus, lupus news, where to find the best websites for our various secondary auto immune diseases so common for us luppies and more. I have so many more plans but there are only 11 entries from me so far in 2010. Not great, I know, but most of them are recent. I took a few extra days off from my New Year's resolutions due to holiday tiredness
So I am trying to update at least once a day but hopefully more. Enough on my plans, but I just want to explain one more thing about why I am doing this website. When I got lupus. I spent 3 years reeling, flaring, getting sicker and sicker by the day it seemed sometimes and I was angry, depressed, just a basket case. There is no other way to describe me. I was so angry, so scared, I would have horrible panic and anxiety attacks and was in so much pain, so bone dead tired like a tired I had never experienced before. I know all you luppies know what I mean but for any non-luppies reading
, a bone dead tired so much worse than after the stay up all night sleepovers in my 20s that hurt so much more than the ones in my teens. A tiredness that made me fall asleep while sitting on my couch talking and laughing with 2 girlfriends, never making it through a movie, no matter how good it, waking up in a panic and not knowing where my toddler was because he had climbed out of my bed without me hearing him and left the only safe proof room in the house because the rest of it was (and still is) so filled with toys, clutter, dishes, etc. Fatigue that is just impossible to find words to describe other than bone dead tired. Like you can hardly move your body but you have to because we have kids, dogs, work, responsibilities so we are forced to function when we are that tired and it is so hard to keep moving when you just want to quit and run far away and sleep. It hurts to dress my kids, buttons are torture, put on shoes, brush hair, put on sunscreen, I am totally exhausted. When I am flaring really badly, I put toys and things for my littlest son to play with in the bedroom, make sure everything is safe put on Sesame Street and sleep as much as I can. And just function from task to task until my husband comes home and takes over and then I can lay in bed or take a bath and then take an Ambien or whatever and just sleep. Tell my husband he has kid duty and sleep as long as I can to try to strengthen my immune system as quickly as possible. But I digress again! Back to my first digression, it will be 5 years in October since I was diagnosed and even now, the worst emotional sadness for mes feeling so alone. So that is my primary goal, to connect with other luppies and help each other to not feel so alone.
Now, I have completed digression 1 & 2, back to the original point of the totally annoying technical difficulties. I apologize again and promise I will do everything in my power to never have that happen again. I am very glad to be back, sharing and that my site is fixed. It is so therapeutic for me. Now please share back and leave a comment haha...I'm not kidding! Sweet dreams.
xoxo
Lupus Celebrity
Posted by lupuscelebrity at 1/20/2010 9:35 PM 
Categories: loneliness, secondary autoimmune diseases, lupus resources, flares, lupus celebrity, lupus fog, anxiety attacks, lupus news
Tags: flaring loneliness go daddy lupus news lupus sle secondary autoimmune diseases lupus resources flares panic attacks technical difficulties lupus fog anxiety attacks lupus fatigue lupus celebrity fatigue
Categories: loneliness, secondary autoimmune diseases, lupus resources, flares, lupus celebrity, lupus fog, anxiety attacks, lupus news
Tags: flaring loneliness go daddy lupus news lupus sle secondary autoimmune diseases lupus resources flares panic attacks technical difficulties lupus fog anxiety attacks lupus fatigue lupus celebrity fatigue
your article is so informative and interesting. nice shared.
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Thanks for the feedback and for taking me back to that post. It was written in January and so much has changed on the site since then that I am so proud of -starting the forum, making it a full site verses the blog - and yet there is so much left to do. Thanks for your support. xoxo lupus celebrity
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I want to eat!
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You wrote this article?
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