GOOGLE TOP SEARCHES 2008 and AOL TOP SEARCHES 2009 - LUPUS
Google Top Searches 2008:
AMAZING, LUPUS is in there!! Is this due to all of my late night insomniac searches, hahaha? OK, I know it is one year old but I still thought it was interesting to share.
Love, life, java, SAP, Scientology, autism, lupus, 3G and art were in the top 10 so were in good company. Helllllloooo Tommmm...
AOL TOP HEALTH SEARCHES 2009:
LUPUS IS #2 ! WOW, THAT IS SO AWESOME!!!
USA TODAY & AOL reported that lupus was the #2 most popular search for 2009 with H1N1 topping the list.
What does that mean? Who or what could have caused this? Michael Jackson? House's infamous phrase? Lupus diagnoses on the rise? Benlysta and their possible breakthrough after 50 long years? I don't know but something to look into more.
It is exciting that it ranked #2. An increased focus on lupus means more $$ for research & development, more pressure on the government, more focus from pharmaceuticals, more charity donations, additional drugs and treatment options, and the dream of all dreams for a cure for this disease someday. I would be so happy to get me back.
What would I do if my Lupus was cured?
I would go to all of my son's sports games and take my boys to the playground and swimming all the time without worrying about my health. To go outside now, I cover all exposed areas liberally with SPF 50. On the hottest days, and I live in Florida with many, many hot days, I have to wear a t shirt or I feel like I am going to explode from the heat. So I wear a t shirt, capri pants, a large hat and big sunglasses. As I stand there miserable in the heat looking fruitlessly for shade, I start wondering what the sun is doing to my insides as the rashes that streak across my cheeks and the bridge of my nose turn bright red. As I sweat and become more uncomfortable, it seems my brain is boiling as well. I either get angry or weepy and most of the times it is both. I do my best not to express it, getting angry in my head and then crying silently to myself but sometimes I can't help expressing the anger which is usually directed at my husband. I have a long list of things to fight with him about, unfortunately. In addition to my emotional reaction, the heat and sun exposure makes me nauseous with a migraine headache and horrific muscle aches. And then the fatigue sets in, an exhaustion that is indescribable, that makes you want to cry at the thought of getting out of bed and the low grade fevers throughout the day that gives you a slighter feeling of overheating and muscle weakness that makes it exhausting to hold my arms up to change my little son's clothes or shampoo my hair. And the worst part about flaring from an outing in the sun/heat is I don't just pay for a day. I pay for however long the flare takes. The shortest flare I have experienced is 4 days. The longest? The one I am in now. I have been flaring the majority of the last 1 1/2 years since I had my 2nd child and I don't see an end in sight unless I go on high doses of prednisone again which is not desirable or medically advisable or to try a new medicine. But Dr Seb, my rheumatologist, want to put me on MTX (methotexrate is a chemo drug used in lower dosages for lupus) and I am scared. I want to wait it out for Benlysta verses take an immunosuppressant with H1N1 everywhere. So that means dealing with the pain as best I can until I can try Benlysta. Benlysta supposedly attacks the specific cells, I think b cells, rather than attacking the whole body like the chemo drugs do. I just don't know if I will be able to hold off long enough for FDA approval. Plaquenil just never kicked in this second time around. I quit Plaquenil 1 year before I got pregnant with my 2nd child and did not start it again until, I have no idea - my memory sucks, hold on , let me think about this, I think April of this year. So it has been over 7 months and hardly any improvement. But I want to give the plaquenil a little more time and I have a high threshold for pain, so hopefully the flare won't get worse and/or I am not ordered to go on the MTX by Dr. Seb.
Horrific, toes curled and teeth clenched pain up and down my legs from my hip to my heels. Neck pain from sporadic slow shots of intense pain to constantly tensed shoulders waiting for the next fast stabs of pain. Also, my currently fractured left foot and formerly fractured right foot both ache & throb incessantly. What finally helps? Oxycodine, the maximum prescribed dose of oxycodine. Hold on, I am getting that right now, be right back. OK, I have my night pills ready, all 6 of them, 2 oxys, calcium (for osteoporosis), hydroxychloroquine (plaquenil for lupus), lorazepam (ativan for anxiety) and fish oil (for inflammation). My pain is so bad I wake up at least twice a night to take more pills. Well, enough babbling for today, I am going to lay down and wait for the pain pills to kick in (20 minutes and counting) so I can go to sleep. xoxo lupuscelebrity
Posted by lupuscelebrity at 12/12/2009 9:54 AM 
Categories: hydroxychloroquine, osteoperosis, autism, lupus
Tags: google. aol ativan searches face rashes House M.D. lorazepam lupus sle oxycodone Michael Jackson osteoperosis hydroxychloroquine scientology plaquenil autism Benalysta Tom Cruise
Categories: hydroxychloroquine, osteoperosis, autism, lupus
Tags: google. aol ativan searches face rashes House M.D. lorazepam lupus sle oxycodone Michael Jackson osteoperosis hydroxychloroquine scientology plaquenil autism Benalysta Tom Cruise
The camera doesn't make a bit of difference. All of them can record what you are seeing. But, you have to SEE.
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