My Update 12/4
Busy day today. Woke up at 8 and was dragging from the moment I got out of bed. My right foot hurt every step I took. I was worried it's peripheral neuropathy but Doctor said today it could be from the herniated discs in my neck. I had to be at the doctor by 9:45 - very hard for me on a good day but impossible w/no pain pills so I am able to be alert when I talk to doc. Of course I was running late - only 5 minutes though. My miracle boy was so good - awake & flirting w/the staff & sleeping while I met w/the doc. I couldn't have planned it more perfect. Thank God I was blessed with any easy baby this time around. I wouldn't be surviving it any other way.
Then I had to go food shopping - we have been existing w/no eggs, butter, snacks, etc for 3 days now. By the time I picked up my older son from school I was completely exhausted. I have been on the couch since unpacking the refrigerated stuff & putting on a load of wash - my husband complained this morning that he was out of underwear....*Sigh* But at least sitting on the couch gives me time to work on the website...
We officially bought it yesterday- lupuscelebrity.com. My goal is to become a famous celebrity with lupus. I am not quite sure HOW I am going to do it but I figured, start with this blog & get my voice out there. My ultimate goal? To be on Oprah. Why? Because I love her, love her show & she does so much good for people out there. And if Oprah likes you..she can turn you into a star. Look at Cherise, Dr Phil, Dr Oz, etc. My ultimate fantasy? To write a book & have Oprah select it for her book club. This is my wish- hope board - whatever the heck it is called in "The Secret" - this is my public wish board. But first things first, I have to get the website up & running. I worked on it SO LONG yesterday & messed it all up. I had to call and speak to a representative at GoDaddy that reset it for me so I could start over. Now I just have to muster up the energy to try again. It is like learning another language for me. But I want to figure it out SO BADLY! I have felt so alive for the first time in a long time the last couple of days since I started blogging just having an outlet for myself. And it justifies the hours & hours I spend on the couch every day because I am in too much pain to do anything else. Between taking care of my 4 month old & 4 year old & just getting through the necessities of life, I am so exhausted! But this gives me direction. I want to help other people & put a spotlight on lupus. Maybe someday this will make me getting this horrible disease make some sense to me. Because I am definitely not someone who is thankful I have Lupus - it sucks. Do I question WHY I got it? NO. I have always said I would rather suffer than my children so I don't question why things happen. Ever. I am beyond grateful that I have been blessed with 2 healthy boys and I just pray that they remain that way & that I can live long enough to see them settled with children of their own. That's my greatest life desire. Well, let me get working on that website...
It sound quite terrible being that tired and depleted each and every day. I know that I feel tire(with two kids running around) each and every day and I am not affected by lupus. Its good to hear that you are getting by, and I wish you all the best. Stay motivated and stay healthy.
Kevin
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